Aaron likes me to help him get his bed
ready at night. He almost always makes
his bed in the morning, but at night he wants me to assist him in making sure
that all the covers are pulled up just right.
Then the last thing we do is to cover all the covers with his animal
print soft blanket that he got for Christmas.
He loves lots of covers, summer or winter, that’s for sure.
Last night he and I were going through
this bedtime routine. I made sure his
long body pillow was centered where it was supposed to be…..that his sheet was
pulled up……then his heavy corduroy cover – a bedspread, actually, that his
Granny got him many years ago – was tugged into place………then his soft brown
blanket had to be adjusted…….and next we shifted and rearranged his pretty red,
white, and blue quilted cover that is rarely seen, unfortunately.
That was when Aaron paused and said, “Look,
Mom.”
I looked down, expecting to see a spider
or an ant or something crawling. You can
see how my summertime mind works. But I
saw nothing. So there stood Aaron and I,
staring down at his bed. He was looking
at what he knew was there, while I was looking at who-knows-what.
I looked over at Aaron and then he
pointed as he said, “A wrinkle.”
Oh, yes.
There it was……an offending wrinkle.
Aaron will not tolerate a wrinkle in his covers. Not a single one. So I gave the cover a little tug and the
wrinkle disappeared…….and Aaron and I happily proceeded on with our task. The bed was soon made to his specifications
and all was well.
Isn’t it something, I’ve thought since
last night, that Aaron notices something as mundane and unimportant as a wrinkle
in his covers and yet so many important things in life seem to be oblivious to
him? We go in a store and I know to
remind Aaron not to whistle…….or make his farting noise with his mouth……and to
keep his hand out of his pocket, because he just scratches himself in a most
embarrassing manner…….oh, and don’t clap, Aaron! Those are a few things I tell Aaron. Other matters come up as we go along, believe
me.
Now to me, these are major wrinkles, but
not to Aaron. Why don’t these annoying
traits bother Aaron as much as a wrinkle in his covers? And why does he love to whack us on our rear
end? He does that to the staff and other
clients at Paradigm. Or give us a robust
slap on our back? Or a pinch, or treat
our bodies like they are drums. These
are major wrinkles to us, but not to Aaron.
I sure wish they were wrinkles to him, but they’re just not…….and we can’t
make that happen.
Why does he say obnoxious and even
offensive things to people? When
questioned about it, he nearly always says that he was just trying to have fun. So once again, we explain the concept of fun………and
remind him over and over that his idea of fun is not usually anyone else’s idea
of fun. Does he really not get it or is
he just stubborn?
Individuals with autism have a very
difficult time relating to others. Aaron
doesn’t have filters, so he’ll say or do whatever comes to his mind at the
moment. Some behaviors are repetitive,
and others occur at the time he may see something or someone. We know to be observant when we’re out with
Aaron as we try to intercept inappropriate behaviors.
Aaron, don’t stare at the woman in the
wheelchair. Aaron, don’t say a word
about that person’s unusual hair. Aaron,
not a peep about his tattoos. Aaron,
quit staring at her piercings. Aaron, do
not say shut-up under your breath when we pass that fussing child. Aaron, don’t pull the box of cereal out of
that huge display. I was too late on that
one. I can still hear the sound of those
falling cereal boxes in Wal-Mart.
These are wrinkles, Aaron!! Don’t you see them??!!
Nope.
He doesn’t see these life wrinkles at all. It’s our job to keep teaching and to keep
reminding and to keep damage at a minimum.
And often to keep a red face, depending on what he said or how offensive
or embarrassing he was.
At other times he’s funny. Even when he’s not so funny, or when others
are staring at him the way I tell him not to stare at people, I can smile and
hold my head up high………..or try to walk away fast from the situation, with
Aaron lumbering along quickly behind me.
HaHa! We sure are a sight to see
sometimes.
A word here, a tug there, some
instruction in the hopes that it will stick, and another wrinkle is gone…….only
to return, I know. But we have to keep
the wrinkles smoothed out so that Aaron’s life…..and OURS…..is tolerable.
“Look, Mom. A wrinkle!”
I know Aaron. Believe me, I know.
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