Last night
was a seizure night for Aaron. We are so
thankful that he doesn’t have constant daily seizures like our friend’s son,
Elijah, has. I told Wendy this morning
that I don’t know how she does it apart from God’s grace. I know that each of us who know the Lord
depend on His grace for the many circumstances that we face in this life. Having a suffering child is tough. When Aaron has seizures is when I feel most
vulnerable emotionally. His autism is
high functioning, though in its own way debilitating, but he at least can
function. His autism makes him at times
very frustrating and it causes him to be in trouble more than we like, both
here at home and at his day group. Or
then he can also be very endearing and funny, even hilarious.
But his
seizures……they make me sad. They show me
the seriousness of Epilepsy…..the danger.
I may be vulnerable emotionally on these days, but he is vulnerable
physically. And as his mother, that
scares me….and makes my heart hurt.
However, I
know from experience over the years that I cannot dwell on the scary or on the
negative, even when it comes to my son…..my first born. Being aware is one thing. Being defeated with constant worry is quite
another. And constant regret……that’s one
thing that I very consciously pull my mind away from when it starts down that
path. I would love for Aaron to have a
normal life, a job, a wife and children…but he doesn’t and he probably never
will. Living with regret over those
issues only pulls me down and doesn’t do anything to help Aaron. Plus it’s not honoring to God, Who wants me
to trust Him in all things. That means
ALL. Even Aaron, my son, and my hurt
over his pain and difficulties.
Aaron slowly
made it downstairs this morning after his three seizures. He tried to stay up and awake but as is
typical for him, he laid back down on the couch and fell promptly asleep. I covered him with his favorite blanket……the
animal print blanket…..and he slept deeply until he had another large
seizure. Now he is awake off and on,
talking about wanting his coffee that he missed this morning……will it still be
hot…….when can he have it……worried that he won’t get to drink it……typical
Aaron.
Earlier,
while he slept and with me being unable to leave this area of the house for
fear of another seizure, I stood at the kitchen sink. I was washing the produce that I had gathered
in the garden yesterday evening before dark.
Some tomatoes…..okra…..a red pepper……one pear that I was able to reach
from our pear tree……and a few stray cucumbers.
On one of the cucumbers I saw the unmistakable signs of worms. The brown, crusty spots on the outside of the
cucumber were my clue, so I grabbed a paring knife and cut into the peel. Yep, there it was…..a yucky worm……and then
another nearby. It was tempting to just
throw the whole cucumber away, but I’m pretty thrifty about my garden produce
that we’ve worked hard to raise. There
was still plenty of good left in that cucumber, so I washed the remainder and
put it with the other healthy produce.
Aaron loves cucumbers, so he can eat it later.
This might
sound strange, but Aaron’s a lot like that wormy cucumber. He has his issues…..his “worms”……..that
disrupt his life. The autism….the
Epilepsy……they have completely changed his life from what we thought it would
be. When placed beside his sister and
brother, we can see a stark contrast.
Andrea, a scientist and geneticist in a major lab……and Andrew, working
on a professional NHRA pit crew. Their
lives are dreams come true for both of them.
We love hearing about their work, even when we don’t understand half of
it. It’s exciting and fulfilling for
them.
Aaron is
like that cucumber, yes. He has some
chunks removed……some expectations that we had for him that had to be
removed. But he has amazing value if we
but stop and look. God does NOT create mistakes. Aaron has tremendous worth. He draws us to God in ways we probably never
would have been drawn otherwise. He
keeps us humble. Oh, does he ever!! He keeps us at times bowed down with worry or
frustration or embarrassment. But listen
to the verse God gave me this morning:
“But You, O
Lord, are a shield about me; my glory, and the lifter of my head.” (Psalm 3:3)
I love how
God gives me what I need, when I need it, from His Word. He lifts my head to look not only up to Him,
but to look at Aaron with new eyes……eyes of faith and trust in the God Who
loves Aaron and loves us. God has a plan
for Aaron that is every bit as important and amazing as the plan He has for
Andrea and Andrew. We just don’t always
measure Aaron’s value that way, but God does.
And He reminds me on these days that I need to as well.
Aaron……my
wormy cucumber……just in this little area of my house, God has once again spoken
to my heart.
Friend who
is suffering today, never doubt God’s plan and His love for you. Let Him be the lifter of your tired
head. He does care…..He does have a
plan……for all of us.
Including my
wormy Aaron. My perfect Aaron, with lots
of good in him that God is using.
This comment has been removed by a blog administrator.
ReplyDelete