As I wrote in my last blog, Aaron had a rough
seizure day on Tuesday of this week.
When he made it downstairs that morning, he said, “Mom, I don’t feel
good. The reason was……I’m guessing was……I
couldn’t sleep well last night.”
Thankfully, he doesn’t remember his seizures and so he was trying to
understand why his head hurt and why he felt terrible. He had another seizure later that
morning. His whole day was spent on the
couch.
That night I played a game of Skip-Bo with him. It was sad to just sit there and watch him…..so
slow and clumsy. He had a hard time
holding the cards, and it took him a long time to think of the moves to make…..decisions
which usually come quickly to him. In
fact, when we play Skip-Bo he is often urging me to hurry up. But on this night he was really out of
it. I prefer the quick, sharp Aaron for
sure……even when he’s trying to cheat!
But on Wednesday he was well enough to go to his day
group, and by Thursday he was fully back to normal. On Thursday morning I took him with me to
Chick-fil-A, where we got a free breakfast biscuit. We brought it back to the house and sat at
our table, enjoying every bite. I was enjoying
Aaron’s laughter, though, and his being back to his usual funny self.
That afternoon, when he returned from his day group,
he bounded in the house in his usual loud fashion. He found me downstairs and as always, with no
hello or any other greeting, he immediately said, “Mom! I worked on a house today!!” He then excitedly explained that he had gone
with Brian, one of the staff, to work on one of Paradigm’s residential
houses. Brian is getting this new house
ready for clients to move into, so Aaron was one that went with Brian to help.
Now helping in this fashion is totally out of
character for Aaron, so I was surprised.
Surprised that Aaron went……surprised as he told me that he helped……and
very surprised that Aaron was excited about it.
He told me that he helped Brian put up “fire detectors.” And that he helped Brian by handing him
tools. And that he helped “tear carpet.”
“Mom! We cut
carpet with a slicer!!”
Well, I know Aaron loved that because he always
wants to help me cut vegetables in the kitchen.
You know…..a guy and a knife. But
this isn’t always a good mix with Aaron involved. I asked Aaron if he liked all this house work
that he did.
“Well, it wasn’t my favorite,” he replied. “I’m not a house person.”
And I smiled……and smiled again when he saw me
talking that night on the phone with Gary.
Aaron leaned close to my face several times while I talked to Gary. “Mom!!” he tried to whisper……but not quite
achieving that, as usual. “Mom!! Can I tell dad that I worked on a house?”
So I let him tell Dad that he worked on a house,
while I watched Aaron grin from ear to ear as he talked. He paced the family room over and over as he
talked about the “fire detectors” and the carpet and the tools. It was fun to see……and I knew that Gary
shared my surprise at this working on a house business that Aaron has rarely
enjoyed before.
Aaron had also told me that one of the other clients
went along to help as well. I was a
little concerned when he told me that it was J who went, because Aaron and J
often seem to have issues. But Aaron
said things went well between them, except that he added: “Well, some of the time J and I were rowdying
around.”
Now I wonder what Brian would add to that…..but I’m
not sure I’ll ask. I want to relish the
thought of my new handyman Aaron, at least for a while.
And there was one more element to this working day
that Aaron had. Lunch. Aaron’s favorite activity, by far.
“Mom!! Brian
took us to a Chinese restaurant! We had
soup that looked like it had worms in it……and parsley weeds!!”
Well, isn’t that the most appetizing meal I could
imagine? I know that Aaron will never be
a promoter for a restaurant. I’ll mark
that off his possible job list.
He seemed to fully enjoy the wormy soup, though, and
the egg rolls he told me he ate, because when I asked him later if he wanted
some supper, he said, “No, I’m full.
That Chinese restaurant…..their food is BIG!”
Aaron, it’s not the food that’s BIG.
Later, Aaron and I took Jackson on a walk around our
back yard. After all that BIG food, I
especially wanted to take Aaron on a walk!
We were near the end of our walk when Aaron sighed
and said, “I’m tired after doing all that fixing!”
It’s hard being a house person, isn’t it,
Aaron? Hard for you…..but so much fun
for me!
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