The time
change certainly caught up with Aaron today.
He was sound asleep when I finally went in his room to wake him up this
morning. Pillow marks were all over one
side of his face, and he was struggling to open his eyes. I think a lot of people could relate to Aaron
on this Monday morning of Daylight Savings Time. I was surprised that he wasn't irritated with
me for telling him that it was time to get up and get ready for his day. But when I returned to his room a couple
times, and found him still sleeping, his mood began to change.......and not for
the better. He informed me in no uncertain terms that he
was tired, that he did not want to get out of bed, and that he most definitely
did NOT want to hurry!
I went into
de-escalation mode before he fully escalated.
That means that I didn't harp on him to rush, rush, rush.......but I did
tell him that I had poured his coffee and I asked him if some cinnamon toast
sounded good. Sometimes these incentives
work far, far better than to nag or to display anger. I could hear even in Aaron's voice that such
was the case today. He was relieved and
all too happy to say yes to the coffee and the toast. But he still refused to come anywhere near
the concept of "hurry." I left
him at the table while I took Jackson, who doesn't need to eat the cinnamon
toast that I knew Aaron would feed him, up to my room with me while I finished
getting ready. It wasn't long before
Aaron had eaten his breakfast and came to my room to talk to me.........and to
ask if we could stop at Dillon's on our way to meet his group.
Now I knew
that the reason Aaron wanted to stop at Dillon's would involve food, and more
specifically, I imagined it involved candy.
He has been without candy for days, and now that we know he is not
Diabetic, I was fully expecting this request to come at any time. I told him that I wasn't sure if we had time
to stop at Dillon's, especially since he didn't want to hurry........when
suddenly the idea of hurrying became very appealing to Aaron. It wasn't long at all before Aaron was almost
ready to leave. He finished putting his
shoes on in my room as he confirmed once again that we were going to Dillon's,
and I confirmed to him that we were not going to go overboard on buying
candy. Of course he agreed, and soon we
were in the van.
Aaron
shivered on this cold yet sunny morning as he buckled his seat belt. He commented on how cold it was and I
agreed. He continued, "Mom, when
will it quit being cold?" I told
him that it would be warm later in the week.
"When?" he asked. And I
repeated that later in the week it would warm up.
"Mom,
quit saying week!" he declared.
"What DAY is it going to get warm?!"
How could I
be so silly? Of course, literal and
specific Aaron wanted to know the exact day that it would get warm. None of this nebulous "week"
business would fully answer his question.
I picked a day and told him and he was satisfied. How could I forget his simple rules for
living? Pick a day and be done with it!
Soon Aaron
was in candy heaven at Dillon's. He and
I scanned the shelves for his favorite Starburst Jelly Beans, but they were not
to be found. Then I remembered that they
were probably on the Easter aisle. Aaron
was disappointed at this point, and was skeptical that his jelly beans would be
on the Easter aisle instead of the regular candy aisle where they always are.........but
there they were! Stacks of Starburst
Jelly Beans were right there amongst all the other Easter candy. He agreed that one bag was plenty, and soon
we both left Dillon's, happy with our find and with each other.
As we drove
to meet Cody, Aaron commented that the rash under his arms was better. I had looked at it earlier and was also very
glad to see that it was healing. The
blisters have dried up and disappeared, leaving dead skin in their place. This has not gone unnoticed by Aaron, of
course. "Mom! My skin is coming off! I was creeped!!"
I assured
him that this was natural and normal anytime that a blister was healing. He was happy to hear this news, but
continued, "When I looked at my skin, it creeped me off!!"
Well, don't
be creeped off, Aaron. You're healing
and you're going to be just fine.
But he moved
quickly on from being creeped off to being quite excited as he informed me of
his progress. "Mom! I can lift my underarm now!!"
Wow,
Aaron! You can lift your underarm
now? That's..........amazing!
We were now
at the Paradigm van and Aaron, as always, rolled down his window while Cody
rolled his down. And as always, Aaron
didn't say hello or how are you or anything else personal. It was, "Hey, Cody! My skin under my arm is coming off!"
Yes, yes,
Aaron.........the whole world wants to hear that the skin under your arm is
coming off. Cody laughed because he gets
Aaron, and I laughed because I get Aaron.........and I'm happy that Cody gets
Aaron and so does the other staff at Paradigm.
Aaron held on tightly to his bag of candy as he got out of the van, and
I wondered if he would share it or keep it all for himself.
Despite the
juggling act of keeping Aaron level and happy, I'm thankful for this morning
that we got to share together. Simple,
yet complex, this mind of our autistic Aaron.
As colorful as the jelly beans that he clutched so tightly.
Aaron does
color our world with his unique personality and expressions. Life might be quieter and simpler without
Aaron...........but it would also be dull and bland.
I love all
the colors of Aaron! And I'm so happy
that he can now lift his underarm!
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