Aaron had
two doctor appointments this week. On
Tuesday we went in for his yearly eye exam, and on Thursday we went to the
dentist to have his teeth cleaned. He
very much prefers the eye exam. For one
thing, nothing hampers him from talking to his heart’s content at the optometry
clinic. No one has their hands in his
mouth, doing uncomfortable procedures, and so he can talk and talk…..which he
definitely did. He charged right up to
the check-in counter at the eye clinic and didn’t even say hello before he
started telling the two receptionists all about Fallen Skies and alien skitters
and the skitter-in-charge, named Cochise.
It’s just
amazing how Aaron will launch right into his tall tales without one word of
hello or a few words of explanation to get him started. Nope, he just barrels right in to his review
of whatever is currently on his mind, oblivious to the confused looks of those
to whom he is talking. Or he’ll mention
his day group, Paradigm, or someone at Paradigm, as if these ladies know all
about this place and those people……which they don’t, and so once again they are
confused. This is why one of my job
descriptions is that of interpreter. I
definitely multi-task big time as I try to sign forms, go over insurance, check
for information changes, and explain skitters.
Thankfully
these ladies were delighted with Aaron.
Their give and take with him only encouraged him to continue with his
stories, and I had to urge him to finally hush and follow me to a chair. His forced silence was short lived. He was immediately called back to begin the
exam, so he hardly missed a beat before he was telling a new person about
Falling Skies and skitters and that he broke his glasses the week before. He made me laugh as he did one of the eye
tests, putting his hands up to the machine as if he was gazing at something
exciting. Maybe he thought he would see
another skitter?
The eye exam
went well with patient Dr. Fisher……our friend, Brandon. Of course, Aaron just had to tell him that he
got in trouble for calling Stephanie a babe at Paradigm. And there I was, proud Mom, wondering if I should
explain. Then it was on to get his new glasses. Trying on glasses is Aaron’s least favorite
part of this process. It ranks right up
there with trying on clothes. He just
doesn’t want frames that make him look like Clark Kent. After that fact is established, he could care
less. And going over insurance is really
boring to him. Again, two understanding
technicians and lots of laughs helped tremendously. Soon we were eating lunch at Chili’s and all
was great in Aaron’s world.
Thursday was
teeth cleaning day. The dental exam is
really, really Aaron’s least favorite thing in the world to do. Most of us don’t like teeth cleanings, and
Aaron is no exception. It’s
uncomfortable for Aaron, plus he can’t talk and so it’s a long process of
frustrating scraping and rinsing and forced silence. I used to go back with him, but now I let him
go alone. I urge him to be mature…..plus
it’s best for me to have an element of ignorance about what really goes on back
there, on Aaron’s part. I know he gets
frustrated and impatient. Once he bit
the hygienist. He said it was an
accident. I wasn’t totally
convinced.
Another part
of it is that Aaron doesn’t want us to talk about how he doesn’t do a good job
with brushing his teeth. That’s why we
have gone every four months for cleaning, and now have decided to go every two
months. Aaron starts getting angry if I
talk about his teeth at home, if I try to help him at home, or when the dentist
or hygienist is talking to me about Aaron’s teeth. We try to keep it low key but with
instruction for him, too, yet nothing really helps.
Later, as he
took full advantage of the Pizza Hut buffet, we mentioned his teeth just a
little. Most of the time we talked about
whatever entered his mind as he thoroughly enjoyed the pizza and the
salad. I laughed at the dressing on his
nose and the look on his face, and I had to tell him many times to talk softer
as he was talking in high gear once again, like he was making up for the lost
moments when his mouth was silent at the dentist’s office.
We went to
Sam’s for a few things. On the way home
we stopped at my elderly friend’s apartment.
Aaron hadn’t seen Nora’s new place.
I dropped off a sweater to her that I had repaired. She was delighted to see Aaron. Once again I was the interpreter as he told
her about skitters and Paradigm this and that, and she stood there
clueless. She gave him a piece of candy,
and he thanked her. “Are you glad I said
thank you?” he asked me as we left. “Are
you glad I told her hi?” I told her that
I was very thankful that he had practiced his manners.
Manners were
a little absent later that night, however.
A lot absent, actually. Like a
light switching off….or on…..Aaron’s mood changed dramatically. We haven’t seen that kind of change in a long
time. He instantly went from happy to
angry as he prepared to go to bed. He
decided to focus on his teeth.
“Mom, you
make me feel like I’m bad in my mouth! I’m
not going back to them!!”
He slammed
our bedroom door, and he slammed his bedroom door. Then I heard him stomping up the hall, where
he barged in our room yet again. “I’m
not going back to them!” he angrily said….referring to the dentist. And he called me a name, several times. This was surprising because Aaron has been so
mellow lately. I wondered if this foul
mood was related to his new seizure drug, which can cause anger. Or was he going to have some seizures. Often, mood changes precede seizures.
And sure
enough, he had two hard seizures during the night, and another one yesterday
morning as he lay on the couch. He
chewed the end of his tongue again, and wet the bed. I wondered what he thought as he silently
watched me yesterday morning in his bathroom, on my knees cleaning up the pee
that was on the floor around the toilet.
He was unsteady when he got up and he told me this had happened.
I thought
about his anger the night before, and the name he had called me. It would be easy sometimes to show anger
right back to him, and I certainly have done that. But that night before I had remained mostly
silent, knowing that it was futile to reason with Aaron when he was so
angry. Now before our issue was
resolved, I was on my knees cleaning up his mess…..because I love him.
Just like
God loves me, I thought. Here, once
again, in my life with Aaron I have another example of God’s love for me,
expressed unconditionally. God loves me
when I’m happy…..He loves me when I’m angry……and he cleans up my messes and he
soothes my heart over and over again. How
can I do less with Aaron?
I washed all
of Aaron’s bedding during the day as he slept on the couch, and was reminded
again of God’s love for me as I love Aaron.
I’ll be doing this again, too, and so will God with me. Faithful love is what God shows to me, and is
what I need for Aaron, as well…..even with the still fresh reminder of Aaron’s anger
the night before.
Last night,
when Aaron could no longer keep his eyes open, I helped him get in bed. His covers were all clean and fresh. He was ready to get in bed when he remembered
that he needed to fill out his notebook.
He had written the time that he got up that morning, so now he wrote the
time that he went to bed. It was
9:52. Then he asked me to put his snake
and his skunk in the bed. I laid Mr.
Snake under the covers and Aaron stood there staring at him. Then he told me to scoot him over a little,
which I did. Aaron stared again. And I had to move Mr. Snake once more until
he was finally in just the right place.
Then the skunk went in the bed, just right, and finally Aaron got slowly
under the covers.
He gave a
huge smile as he felt the weight and the warmth of the covers on his tired
body. We hugged and Aaron smiled
again. Then he laughed, and I asked him
why.
“I told Dad
I’m glad you took care of me when I had a seizure,” he slowly said.
All thoughts
of anger and name calling vanished at that moment. I was thankful for the privilege I have to
take care of Aaron, and I told him that.
He smiled again as I pulled the covers up until just his smiling face
was showing. I turned off his light, and
I closed his door…..and I thought of what a difference a day can make.
What a
difference knowing God makes, too. I’m
glad God takes care of me so that I can take care of Aaron. And I’m glad that He continues to use Aaron
in my life to teach me so many things about Himself.
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