I often write about how up and down life with Aaron is,
because Aaron is up and down. Aaron can
be happy when he first gets out of bed in the morning, like he was today, but
an hour later he might be telling me to shut-up. Yes, he does that at times. Or he may be grouchy and tired first thing in
the morning, but by the time we leave for his group he is bubbly and anxious to
get on with his day. I guess we’re all
like that, but sometimes for Aaron it’s much harder to predict or to
control.
One day on the way to meet his group, Paradigm, Aaron said, “Mom,
I’m so tired. I got up at 6:10. I went to bed at 10:21. I need some excitement today to keep me from
being tired!” I laughed……partly because
Aaron usually provides enough of his own form of excitement to keep everyone
from being tired. Unless they’re tired
of him, which is often the case.
Sometimes Aaron starts off well at Paradigm but then the day
deteriorates for whatever reason. He
likes to call me in the afternoon if he can, and I can tell by the sound of his
voice how his day is going. Like he said
one day, “When I first arrived at Paradigm, it was a good day…….but later on it
wasn’t.” Then I just hang on as I listen
to him tell me why later on it wasn’t a good day…….or I try to gently drag the
story out of him, piece by piece. The
piece by piece business may take a while, sometimes even into the next
day. Patience is a requirement when dealing
with Aaron issues, that’s for sure.
Aaron has gotten so that he often won’t go out on the group
activities with Paradigm. They go
bowling, go to the mall or to other shopping venues, go to a movie on most
Fridays, teach the clients cooking skills, go to City Arts for some painting or
craft fun, and are now doing some volunteer activities, among other
things. None of this is of any value to
Aaron, though, if he refuses to participate.
And don’t EVEN tell me that you’re bored, Aaron Daniel, if
you won’t get out of the chair and head out the door!!
But I always remember what Aaron’s special, wonderful
teacher…….Mr. Z……..told us years ago about our special children. He said that sometimes we have to make it
worth their while. We call it rewards,
although sometimes I think of it as Bribery 101…….and we will always be in that
class.
I tossed our parenting books out the window with Aaron.
So last week we decided that we would have a reward for
Aaron on Fridays if he participates in the daily activity at Paradigm during
the week. For this past Friday, he didn’t
pause for one second before saying that he would like his reward to be a Papa
Murphy’s pizza. Simple enough.
On Friday morning, before we met his group, he reminded me
that if he finished the week with doing his Friday activity – a movie – that we
had promised him a pizza………a Papa Murphy’s pizza.
“Mom?” he said, “You have to keep up to your deal!”
I smiled at his way of putting things, and I assured him
that I would keep up to my deal. Supper
that night was his reward. There was the
pizza…….the Papa Murphy’s pizza…….for supper.
And afterwards Wheel of Fortune, with Aaron getting silly
and comfy in his favorite chair.
Now a new week starts, and we are once again ready to keep
up to our deal. The big question is if
AARON is going to keep up to our deal. Do
we need to reshape the deal a little, maybe saying that if Aaron does four out
of five days of activities then he gets a Friday reward?
Who would have thought I’d be having these inner discussions
with myself over our almost 30 year old son?
Not me, that’s for sure!
But God knew and He daily equips up with what we need, even
when we don’t feel like He does…….or we feel like we totally blow it, and don’t
keep up to our deal. And that happens
more than I care to admit.
But as for this deal with Aaron………Aaron won’t let us blow
our end of this deal. He will remind us
daily, several times daily, of our deal.
And if I know Aaron, the deal itself may get old to him because
it requires his obedience. How human is
that?
We may have another bridge to cross……..another deal to make. We usually do with Aaron.
We’re deal makers and he’s usually the deal breaker, so then
we become deal RE-makers.
Life with Aaron.
Exciting and humbling. But we’ll
keep up to our deal and just do our best, day by day, with God’s help.
I believe there’s a reward for that.
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