I
could tell right away this afternoon, as soon as Aaron came in the door and
found me downstairs, that something wasn’t quite right. As I looked at him I knew that he had been
crying, and that was confirmed as soon as he began to tell me about his
day. He was trying to smile but his
mouth had that familiar taut look that told me he could easily cry at any
moment. I tried to just listen, but his
version of events is usually very hard to follow. Therefore, I had to ask questions, which frustrated
him……especially when he was already frustrated.
That led to me giving him a lecture about what he told me had
happened. I wasn’t helping at all.
After
listening to Aaron, and especially after talking to Misty, one of his staff – I
was able to piece together what had transpired.
Apparently, at the theater, Aaron had given Rosie a playful whack on her
rear as she passed him in the aisle on her way to sit beside him. Rosie didn’t
think a thing about this behavior of Aaron’s. One of the staff told Aaron that he was being
rude, and for some reason Aaron became very sad about what he had done. He finally got up during the movie and sat
outside in the hallway on a couch.
Let
me explain some things about Aaron. He
does not have the filters that you and I have.
He has an almost uncontrollable urge to whack us on the back or on the
rear or maybe on top of our heads. He
doesn’t do it all the time, but often enough that he gets fussed at
regularly. Aaron also has a very hard
time controlling his mouth. Often he is
funny, as you know from what I write about him, but he can also be very
insulting and frustrating. He might call
someone weirdo or stupid or dumb or many other names.
It’s
complicated, but Aaron’s brain literally doesn’t connect things the way that
others do. We have worked and worked
with him from the time that he was a very little boy over these issues……and
many more. He is high functioning enough
that you would think he could control these impulses, but he often cannot. We still correct him……we still reward him,
especially with praise, when he shows restraint……..we still caution him about
correct behaviors and speech before he goes to his day group………but we still see
these same behaviors over and over. We
can’t even tease Aaron very often because if you give him an inch he will take
a mile. In other words, if he sees a
small opportunity that teasing may afford to tease us back, then he will strike
with both barrels. How often have we all
heard Aaron say, “Oh yeah?”…….and then launch into some verbal or physical barrage, all “in
fun.” Therefore, we have to discourage
physical play with Aaron as well as verbal bantering.
Aaron’s
mouth and his hitting are a very large part of his disability when it comes to
getting along in groups of people. When
his staff understands this, and loves and understands Aaron, then things run
smoothly. We are very thankful for the
understanding and loving staff that he has at Paradigm.
Now
back to today. For some reason, Aaron
was very emotional today. Recently we’ve
noticed that he wants to be pleasing, and that he talks a lot about having
friends. He wonders why certain of his
peers at Paradigm like him, which is both sweet and sad to hear. He and Rosie are very special friends, and
they understand one another. They can
poke each other or step on each other’s foot on purpose, and know that it’s all
in fun. So when Aaron gave her a little
hit on her rear, it was no big deal to him or to Rosie. It was also appropriate for one of the staff
to tell Aaron that he was being rude.
Gary or I certainly would have done the same thing.
But
for some reason, today, it got to Aaron.
He didn’t want to be rude, especially to Rosie, and he didn’t want to
have to come home and tell me that he had been rude and that he had hit Rosie
when I told him once again this morning not to hit anybody. So he left the movie that he really wanted to
see, and he sat out on the couch. He
said to me, “I sat on the couch and was thinking. What do you think of me thinking?”
I
had to smile at that. And I told him I
thought it was a very good thing to be thinking. He continued, “What does that mean to you,
that I was thinking? That was new to
me.” As he talked and talked, I felt
like I understood what he was trying to convey.
He was upset that he had whacked Rosie and he was upset that he was rude
and he was upset that he had to come home and tell me about it. But it went even deeper than that. I learned from talking to Misty on the phone
that Aaron had told her the most amazing thing.
As
they drove away from the theater, with Aaron crying, he said to Misty, “Do you
know why my brain doesn’t work like everybody else’s brain? I tell my brain to not do something but it
does it anyway.”
My
Aaron expressed himself in a way seldom heard from him. It was both eye-opening and heart
breaking. How I wish I could reach
inside his head and rearrange all of his neurons for him as easily as I can
gently put a band-aid on his wounds! How
I wish I could give him a magic pill that could control his impulses! How I wish that I could make his life easier.
What
can I do? I can, along with Gary, love
our Aaron. I can listen a little longer
before I jump in with a lecture, assuming I know the whole story as I did today
before he has time to slowly sort it out in his head and tell me. I can, like Aaron, learn to sit on the couch
and do some thinking……….some thinking about what Aaron is thinking. And that can be some deep thinking right
there, trust me. For what Aaron is
thinking is complex and puzzling and confused…..and sometimes just sad. His tears today showed me that.
Well,
he’s in the family room right now crunching on some cucumbers that Gary sliced
for him. I hope he’s done with the
crunching before I go down. He wants me
to do something with him, and I hope that I have the time. Maybe I’ll give his back a good tickle with
the back scratcher, and listen to him talk.
No
telling what I’ll learn if I just listen.
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