Night before
last was a rough night for Aaron. He had
several seizures............ and while this is nothing out of the ordinary for
him, these seizures were stronger, it seemed. It wasn't long after I had lain back down that
I heard through the monitor in our room the sound of him rustling around.
As I got out of bed I heard a loud thump and knew that he had
fallen. I found him sitting on the floor
at his open bedroom door. He was so out
of it that he was hardly aware of what was going on. I finally figured out that he wanted to go to
the bathroom, and I also realized that he needed to change his pants after this
last seizure.
As I helped
him to the bathroom, I saw that Aaron couldn't talk. Sometimes these hard seizures have that
effect. He was trying so hard to
communicate with me but the words wouldn't come. It was as if his mouth wouldn't even
open. He tried and tried to say a word,
and finally a word would come out after great effort. I was able to put two and two together as he
let me know that he needed to go to the bathroom, and then later let me know
that he was in some pain and felt like he couldn't breathe.
I didn't let
him know how much that scared me..........the pain and the breathing issue. I got him settled back into bed, pulling his
pile of covers up around him just the way that he likes. I sat there with him for awhile, watching his
breathing and finally watching him fall asleep.
And I thought about how he reacted during the time in the bathroom and
then as we sat on his bed, and he couldn't form words. He didn't get frustrated, but instead he
would just look at me as if he was asking for my help.........and he would
smile. Over and over he would give me
that look, and then smile. It wasn't a
"Ha-Ha, I think this is funny" smile..........but instead it was like
a trusting smile.......a sweet "It's up to you now, Mom" smile. It was up to me to finish what he was trying
to say; to understand what he needed; to give him comfort and help when he
needed it.
Aaron can be
so rough and gruff much of the time. He
thinks that it's funny to poke and pinch and give us whacks on our back or rear
end. He's loud and sometimes says things
that irritate everybody, and when corrected he says that he thought it was
funny. So when Aaron is vulnerable and
needy, it touches a place in my heart that makes me realize just how fragile he
really is. His health because of these seizures
is at the forefront at that moment, but also his frustrations and fears are revealed
in his eyes. And in that smile.
His last
seizure was around 7:30 in the morning, and soon afterwards he roused up enough
to want to come downstairs. He made it
down the stairs, which scared me again since he was so wobbly, but nothing
would deter him from what he wanted. And again, he couldn't talk but kept giving me
that look and that smile. It was a tough
morning as he tried to get comfortable.
He had a bad headache and he threw up.
I finally rubbed his back and tickled his arm, and he was able to tell
me that it felt good. He relaxed and
dozed off and on, and finally woke up able to talk pretty well. "Do you want me to eat something?"
he asked. I knew he was telling me that
he was hungry, so when I asked what he wanted he immediately asked for tomato
soup. "Tomato soup?" I
asked. "Are you sure?" But Aaron was very sure, so I fixed him the
soup and then went to help him up. As I
pulled on his arm, he said, "You're stretching me." He laughed and I could tell that he was
feeling better. He ate his soup, and
then took his pills. "Are you
poisoning me?" he said.......and laughed again at his funny joke.
He lay back
down and fell fast asleep. Later I heard
him stirring and then heard, "Mom?"
I asked him what he wanted and he said, "Well. Did the fog go away?" We talked about the fog, and it wasn't long
before he offered this observation:
"Mom, since you wanted me to lay here every now and then, do you
know what I was doing? I was
gassing!"
This is when
I knew that Aaron was back. Yes, back
full force and in all his honesty. Later
in the afternoon he went with me for a quick trip to Wal-Mart, and then to get
tacos for him to take home and eat..........with his three forks and his knife
that he didn't use and the napkins and his toothpicks.........you know the
routine now.
Of course,
he talked.......and talked some more. He
talked about fish and about lobsters and about snoring and about losing weight
and about someone he knows that has not lost weight and who still snores. He talked about lots of other things, too, as
always. I was so sleepy that between the
driving and his talking I'm surprised I was able to find my way home. But find my way I did.
I'm glad
that Aaron found his way back from the effects of the seizures, and even glad
that he was talking again. I keep
thinking about that helpless smile he kept giving me and the look in his eyes
when he couldn't talk. Sometimes I say,
either out loud or to myself, "Oh, Aaron.
Just don't talk for a few minutes!"
But when he really couldn't talk, I so wanted to hear him speak. Again, be careful what I wish for, right?
Even his
talk of gassing was good to hear..........sort of. Oh, Aaron!
How sweet. Patty, God has blessed you with such patience. I am sure that is scary, but I am glad he pulled out of it and was "himself" again.
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