Today Aaron
and I went to one of his yearly meetings to update paperwork that the state
requires as part of the services he receives.
Last week the meeting was at Paradigm, his day service provider. It’s interesting to go there and to see some
of Aaron’s friends. Some want to hug me,
some want to shake my hand, and some want to talk to me. They are all so varied and interesting………some
with sad stories, I’m sure………..some with strong, loving families and some not
so blessed. The staff there is amazing –
full of love and understanding and so much patience. I’m forever grateful for them. As I was leaving, one of the young clients
walked me to the door and he said, “Mrs. Moore, Aaron looks just like you.” And then he quickly added, “I don’t mean that
in a bad way!” HaHaHa! I’m not sure if he meant it would be bad for
me or for Aaron, but I didn’t ask!
Today our
second meeting was just with his case manager and with Barb, who works at
Paradigm and whom Aaron loves. On our
way to Applebees for lunch, we stopped at Great Clips to see if they could give
Aaron a haircut. Sure enough, it was
nearly empty and so Aaron got right in – taking off his glasses and then for
some reason his ring, as he always does, for me to hold while he got his hair
cut. The girl who cut his hair has seen
Aaron before and is very kind, so she chatted happily with him as she cut his
hair and engaged him in a great way.
Aaron loves the attention, and the feel of the clippers relaxes him………..so
much so that we were wondering if he was going to fall out of the chair as he
leaned farther and farther over. I
called to him and then the stylist laughed, and Aaron straightened up………for a
minute………and forward he went again. He
perked up when she asked him if he wanted gel.
He loves getting the green gel in his hair, although with a buzz cut he
totally doesn’t need it………but he feels special and that’s always fun, for any
of us……….and definitely for Aaron. Plus
it sure helps him smell good!
We were
still early for Applebees, so I told Aaron that I wanted to run into Lowes to
look at valences. He trotted behind me,
talking all the way, of course. As I
looked at the curtains, Aaron saw the clocks…………and we know how he loves
clocks. “Mom, you know those big clocks
that make that loud noise?”
Yes, Aaron –
Grandfather clocks. “Yeah! Is that why they’re annoying? Because they’re Grandfather clocks?” I have no idea why he thinks they would be
annoying because they’re grandfather clocks – both of Aaron’s grandfathers were
sweet men. Must be a movie he watched
that had grouchy grandfathers. He couldn’t
explain it, either.
He was very
interested in the grills lined up outside as we left. One day after a trip to Lowes with Gary,
Aaron came home talking about the round grills……..which he called “bowl grills.” Today he lifted the lid on a large grill and
saw the two racks. “Look, Mom! That grill cooks double!” And then he spied the smoker/grill with the
little stovepipe chimney. “Mom! There’s a pipe oven!!” Of course, we had to examine the “pipe oven”
and I tried to explain the purpose of a smoker………but Aaron was just focused on
the little pipe chimney.
On our way
over to Applebees, a truck passed us that was carrying a ramp with holes in
it. “Mom, that reminds me of those big
trucks that have holes in them that carry animals.” I told him that yes, they carry cattle or
other animals. I asked, “Aaron, have you
smelled the cattle trucks? What do they
smell like?” First he told me, “They
smell dumb!” And then he added, “They
have too heavy a smell!” Oh, yes, they
do indeed!
Our meeting
at Applebees went well, mostly because there was food involved. For some reason, Aaron wants to pinch or poke
his case manager – so I was happy that he sat across the booth from her. He still managed to kick her, though. Oh, Aaron!
He feels nervous at these meetings, thinking that she’s going to tell
him he has to leave Paradigm, so this is his way of showing his fear. And of embarrassing his mother.
Aaron
ordered Spinach/Artichoke dip with chips, which surprised me………and a house
salad, which did not surprise me. He got
his salad before any of us got our food, and he promptly started putting the
croutons on the table. I stopped him,
and he waited until I got my salad……….and I inherited the unwanted
croutons. Aaron wanted to know what the
black stuff was in his dip………..that would be spinach, Aaron. He dipped each chip very gingerly in the dip,
then shook and shook the chip, and took a little bite. Most of the dip was uneaten, of course,
leaving me wondering why on earth he ordered such a thing. He talked and talked and talked some more
during our meeting, loving the audience and the chance to tell whatever came to
his mind. Somehow as we left, his case
manager said this was her favorite meeting.
Was it the food or was it Aaron?
I didn’t ask.
Aaron
thumped downstairs just now to tell Gary and me about the rest of his day. Brandy, the owner of Paradigm, has two
sons. One is Dirk, who is probably 6
years old now, and the other older son’s name escapes our memory. Aaron excitedly said, “Mom, guess what Brandy
brought to Paradigm today?!” He paused
for me to answer, so I replied, “What did Brandy bring to Paradigm today?” And Aaron answered, with a huge smile, “A
little girl!”
Since when
is a little girl a “what” and not a “who?”
Anyway, Aaron was very interested in the fact that Brandy, who has two
sons, now has a little girl………..and he wouldn’t hear any of my comments about
the fact that she was probably a niece or whatever. To Aaron, Brandy has a little girl. Then Aaron said, “I haven’t seen Brandy’s
boys in a long time. Remember? Dirk and Jerk?”
JERK? OK, I had to laugh…………and so did Aaron………….and
so did Gary. We can’t remember the older
son’s name, but I am quite sure it’s not Jerk…………even though Dirk and Jerk do
have a certain ring to them.
Aaron
thumped back upstairs, quite pleased with his little funny saying and with our
laughter…….and repeatedly assured that yes, Aaron, I WILL come get you IF I can
play Skip-Bo. And so almost ends another
day with Aaron. I am very thankful for
the good people that God has put into our lives………..the ones who cut Aaron’s
hair, take his restaurant orders with a smile, work out his yearly plans
despite being kicked, love him so patiently at Paradigm, and give him ideas of
funny names.
And I’m
thankful that God gave us Aaron. The
future may be uncertain as we make his yearly plans. The winds of change are blowing in the state
services that we receive. Those winds
may blow our way and leave us with “too heavy a smell.” We don’t know what all the changes mean for
Aaron and for us. But God never changes
and He loves Aaron more than we do.
And that ‘s
more comforting than anything else in this old smelly world!
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